When my little brother, Hudson, was only 8 months old, he was diagnosed with a rare disease called Histiocytosis. It affects his lymph nodes and they enlarge and turn tumorous. His specific form of histio is Rosai Dorfman disease. Hudson underwent his first surgery when he was 8 months old, to remove a tumorous lymph node in his groin that almost impacted his femoral artery. It was then that our family was told about his rare disease.  

 Since Hudson's diagnosis, he's had two surgeries, multiple full body PET scans, CTs, and MRI's (all under full sedation) to monitor the progression of his disease. We moved from WA to TX because his disease is so rare, his oncologists weren't monitoring or treating him properly, so my parents made the decision to relocate to Texas. Since then, his disease has been re-classified as a slow growing blood cancer, but thankfully he has no active disease at this time but does suffer chronic joint pain due to it.

 I have become a youth histio ambassador so I can help raise money and awareness for not just my little brother, but for everyone impacted by histiocytic disorders. 

Please consider making a donation to help in our efforts to find better treatments and one day, hopefully, a cure for Histiocytosis. Thank you.