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TJ’s journey with Langerhans Cell Histiocytosis began in January 2012 after developing a severe cradle cap like rash on his scalp. It wouldn’t be until October 2012, shortly after TJ’s second birthday, that our journey would have a name: LCH. After months of battling the rash, random fevers, and colic like episodes, a diagnosis was made revealing LCH of the skin, bone (skull), and blood. TJ spent multiple months in the hospital receiving chemotherapy treatments with multiple relapses (bone tumor of his right leg) and removal of his spleen. In December of 2015, TJ had a new relapse involving his cerebellum and a neurodegenerative LCH diagnosis. We are happy to report that TJ’s last chemotherapy treatment was April 2016 and his most recent scans reveal his brain and bone involvement is stable!!! TJ is in 9th grade and he is nine years chemo free. We couldn’t be happier to celebrate and honor the strides that the Histiocytosis Association has made for patients like TJ. Please join us this year as we hike and honor our Histio Warriors!! We are so blessed to be able to attend this year!! If you can not join us, please consider a donation or join Team TJ as a virtual hiker! God Bless!! Saturday, April 26th I am participating in the Histio Hike Shenandoah and raising critical funds for histiocytic disorders.
Histiocytic disorders are a group of diseases that occur when there is an over-production of white blood cells known as histiocytes that can lead to organ damage and tumor formation. This group is made up of a wide variety of conditions that can affect both children and adults.
While the search for more effective treatments and, ultimately, a cure continues, the Histiocytosis Association is dedicated to supporting and empowering the patients and families who live with these devastating diseases every day.
Please help me reach my fundraising goal. Thank you for supporting me and the Histiocytosis Association.
One-hundred percent of donations go to the Histiocytosis Association in support of its mission and programs.
